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POP Went My World

March 6, 2011

Our little superhero

Friends. It’s been a while. I realize the likelihood of anyone sitting around wondering why MOMnPOP inexplicably fell off the face of the earth is slim to none. And although I hate excuses, just for the record, I have a really good one.

We’ve all heard that life has a way of throwing curve balls. And that you never can tell what’s going to come your way. But three months ago – the Monday after Thanksgiving – my husband and I were on the receiving end of one of the more extreme turns the universe could possibly serve up. It was Monday, November 29, when our first-born – our handsome, hilarious and precocious 4-year-old son, Julian – was diagnosed with an inoperable malignant brain tumor.

Heavy, heartbreaking, unthinkable and insanely anxiety-inducing are just some of the adjectives that could describe what went on over the holiday season and the start of the new year. The intense ups and downs and dramatic details are too many to recount here. I find each day to be a new and different exercise in mental toughness. But for all the difficulties we’ve had to face, it should be noted how many unexpected gifts we’ve received too – silver linings, an abundance of blessings, moments of humility, the reliability of old friends, the introduction of new friends, small miracles and fresh perspectives on this very short and precious gift we call life.

Julian’s safe right now, but he’s far from being out of danger. He’s had to endure so much: admission into five different hospitals, six operations (four of which were brain surgeries), an uncomfortable familiarity with the inside of an ambulance, and an entrance into a rare and very special community at the world-renowned St. Jude Children’s Research Hospital in Memphis. Which has become our home away from home as he receives a second round of radiation therapy and comprehensive care under some of the best doctors in the world.

So yes, life took a dramatic turn, and I’ve been busying myself with priorities way more important than new music, media mania, latest trends, good design and funny videos. But now that I’m getting some footing back, some balance in a new life that is now intertwined with the heartbreaking realm of pediatric cancer – I’ve been thinking about how to use this space. Not sure I’ll ever be back to daily posts, but I think I’m ready to return to writing.

So, after three months of being all-consumed with the not-so-small-task of trying to save my son’s life – I’d like to use this space when I can to relay interesting insights and lessons I’m learning along the way. And for my own sanity, I think it will be good therapy to mix in some of the things that have always interested me and continue to make me laugh as the world goes on around me.

Good to be back. I’ve missed you. To learn more about our campaign to save our little superhero, please visit The Team Julian Foundation.

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6 Comments leave one →
  1. March 6, 2011 7:44 pm

    We missed you. I will look forward to some momnpop again, always well written and a highlight in my life.

  2. March 6, 2011 10:07 pm

    Nettie
    As a parent of two boys similar ages, I want to applaud you for your strength through this. What a brave little super hero you have. I sincerely thank you for sharing such a personal post. We will keep your whole family in our thoughts. And ROCK ON with your posts! You’ve been missed for sure!

    xx

  3. G.G. permalink
    March 7, 2011 2:13 pm

    Nettles, your continued strength–yours and Brad’s–amazes me every day. Love to you all.

  4. Melissa permalink
    March 7, 2011 11:16 pm

    It brought a smile to my face to see your post today. Well done for jumping back on the horse pal. I know you well enough to know that this will be part of your necessary therapy throughout your journey. Write on my friend…write on…
    Much love.

  5. March 25, 2011 11:49 pm

    Hi Nettie,

    You’ve been an amazing mom, to say the least.

    And great writers should write! I was so glad to see this post — keep ‘em coming!

    -Chris

  6. July 4, 2011 11:01 pm

    Nettie I was thinking about you the other day and wanted to see how you were. :)

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